Location v. Placement

A recent U.S. Ninth District Court of Appeals court case surrounding the Individual Education Plan (IEP) of a student with Down syndrome is creating a larger conversation surrounding placement versus location change. In kindergarten, the IEP team wanted to add 20 minutes more pull-out time. The parents disagreed with where the team wanted to do these extra minutes. Instead of the resource room at his neighborhood school, the team wanted to move him to another school with a self-contained class.

This complex case brings up some very important questions: What defines a placement change? Is placement only about percentage of time in general education? Or is it also about setting?


The student’s lawyers in the R.M. v. Gilbert Unified School District case argue that placement is more than just a math computation. “If a district can call a change to a different school a location change, then any child who receives any amount of specialized instruction on a pull-out basis can be moved to a different school at any time as long as the general education minutes remain the same. This will greatly interfere with students attending their neighborhood school, developing friendships in a school that they stay at throughout their education. LRE should mean more than how much time you are in a general education classroom,” Susan Marks, attorney who represented R.M. at the administrative hearing level.

Read Related Post: Details about the R.M. v. Gilbert Unifed School District

The school district, on the other hand, wants to broaden their power of location change. If the judges rule that this was a location issue, then moving a student to any school in the district would be left up to the professional judgement of the school district. “The district gets more bang for their buck if they can pull student into a self-contained class at a centralized location. It’s the medical model. And many people don’t understand why a parent wouldn’t want a specialized program for their child,” explains Marks.

In fact, 9th District Judge Susan Graber reinforced this societal stereotype of parents and students with disabilities when she said “I’ve never heard of a parent who wanted less services.” The implications of this statement sent shock waves through the Down syndrome community. Of course the parents in this case don’t want less. They’re more concerned with what they’ll lose if their son is moved to a school outside his neighborhood and put in a self-contained class instead of a resource room. Disability advocates know what happens next: More minutes spent in a self-contained class. Then they’ll propose a different curriculum, no hope to graduate, and 80% unemployment upon transition to the real world.

It’s obvious these parents care. The Individuals with Disabilities Education Act (IDEA) gives parents the right to decline services. The district can’t say all or nothing. We all have known a parent who refused Physical Therapy or some other service, because it would mean more pull-out time for their student with an intellectual disability. More turns to less.

Read Related Post: What To Do When a School District Doesn’t Understand or Believe in Least Restrictive Environment

Many advocates in the special education advocacy community are very anxious about this case, because the impact could be far reaching. There are legal limitations to LRE and inclusion. The law does give deference to school districts to consolidate services at limited locations. IDEA says students with disabilities must be educated with their typical peers, unless their IEP requires otherwise. The district has argued that R.M.’s current school does not have a self-contained program, so he needs to go to a school that does. Still, Marks argues this is not just a location change, because the self-contained class is a different program than the resource room at his neighborhood school.

This case won’t be as clear cut as L.H. v. Hamilton School District, because in that case Luka went from being fully included in general education all day to a proposal to move him to a fully self-contained class at a different school. The boy in this case has more pull-out time already, and the school district argues his general education time will remain the same albeit at a different school.

The issue in this case comes down to resource room at his neighborhood school or the same amount of time in a self-contained class at another school. Does he need the self-contained class? “We argue he doesn’t because he’s making progress on 100% of his IEP goals in his current placement,” Marks explains. While the school district uses Endrew F. v. Douglas School District to argue they’re trying to be more ambitious, the truth is they’re trying to segregate him into a homogenous group with other kids like him. This is the very anti-thesis to LRE, and not what the research is finding as best practice for inclusive education. 

Read Related Post: How School Districts are Using Endrew F. Against Students with Down Syndrome

9th Circuit judges have yet to make a decision in R.M. v. Gilbert Unified School District. I will be sure to keep you updated. The family or school district can appeal the decision to the U.S. Supreme Court.

Ninth Circuit to Decide Least Restrictive Environment for Student with Down Syndrome

Disclaimer: I am not a lawyer, and cannot give legal advice. The following is my interpretation, as a lay advocate, of the 9th Circuit’s hearing of R.M. v. Gilbert Unified School District on April 11th. My blog supports inclusion for people with intellectual disabilities, and my opinions are my own.

The Ninth Circuit Court of Appeals heard arguments today in a case centered on placement and the Least Restrictive Environment (LRE) for a elementary student with Down syndrome.

During his kindergarten year, the IEP team for an Arizona boy requested 20 additional minutes of pull-out time in a life skills class at another public elementary school five miles away from his neighborhood school. At the time, teachers reported that he had made some progress on 100% of his IEP goals. The parents refused, arguing that the decision amounted to a change in placement and invoked their “stay put” rights. He’s still currently at his neighborhood school, where his sister also attends. He spends the majority of his day in general education with a 1:1 aide.


Read Related Post: Endrew F. Supreme Court Case in Action

During the 15 minute hearing in front of the 9th Circuit of Appeals, the family’s lawyer, Amy Langerman, stated that there were three givens in the boy’s case:

  1. The Supreme Court of the United States explained in Endrew F. that a Free and Appropriate Education (FAPE) for a student with an intellectual disability does NOT require them to keep up with their typical peers. Langerman argued that the boy in this case had made progress in light of his disability on 100% of his IEP goals in the general education classroom.
  2. Congress, in creating the Individuals with Disabilities Education Act (IDEA), strongly prefers that children with special needs be educated to the “maximum extent appropriate” with typically developing peers and removal should only occur “when the nature or severity of the disability of a child is such that education in regular classes with the use of supplementary aids and services cannot be achieved satisfactorily.” Langerman argues that the 9th District the court must follow the “Rachel H. Standard” of LRE, which contemplates the (1) educational benefit of placement full-time in a regular classroom (2) the non-academic benefits of that placement (3) the effect the child would have on the teacher and other students (4) the cost of mainstreaming the child.
  3. Lastly, Langerman argued the code of standard for LRE states a child should attend the same school they would attend if they were not disabled. In this case, Langerman argued the neighborhood school is the boy’s LRE.

As soon as Langerman finished her opening statement the female judge on the 9th Circuit surprised me by stating that this was the “first time a parent was arguing that there giving too many services to their child.” The judge seemed confused as to why the parent wouldn’t want her child to be given 20 more minutes of Specially Designed Instruction (SDI) in a life skills class at a different elementary school. Langerman responded to this to say that the parent agreed with teachers’ initial comments in the IEP meeting that he was making progress towards all of his IEP goals. She also stated that parents of children with disabilities everywhere would be celebrating in the streets if Congress would create a higher standard of education for students with disabilities, but that’s not the law. The law requires they be educated with their typical peers in LRE, and make meaningful progress towards their IEP goals. And the boy in this case was making progress, and not minimal progress.

The female judge also stated that there’s “evidence to support what the district calls for,” in that the law does NOT “require” a student be educated at their neighborhood school if that school doesn’t have the appropriate services to ensure the student makes meaningful progress. Langerman argued that the Administrative Law Judge (ALJ) in the due process case did not have all the needed information to make a correct decision in the case, because Endrew F. came after the ALJ’s ruling in the lower court.

Read Related Post: How School Boards are Using the Endrew F. Supreme Court Case Against Students with Down Syndrome

The lawyer for Gilbert Unified School District opened her arguments with two statements:

  1. The school district wanted to provide more meaningful benefit to the student by offering 20 additional service minutes in math and writing. The boy currently has 105 minutes of Specially Designed Instruction (SDI).
  2. The school district wanted to implement these minutes in a life skills class at a public school 5 miles away.

The district’s lawyer argued that the student “has no peers at the current school.” In a very sad and dramatic tone the lawyer declared the boy “an island in the general education classroom.” She went on to say “the IEP calls for small group instruction, but there’s no peers that he receive SDI alongside at his current school. We are are aiming for higher than some or good enough progress. The district doesn’t think he’s receiving any benefit in general education. His teachers say he would benefit from a life skills class.”

The judges asked if the district had taken into consideration transportation and the impact on the family. The lawyer said the district would pay for transportation to the new school, and had taken into account the family’s situation as much as is needed under the law.

The district’s argued that “some progress would be a denial of FAPE. None of his educators thought he was getting what he needed at the current school.” She went on to argue that the case is not about inclusion or segregation, and that the law does not require him to be educated at his home school if it’s not feasible to do so and make meaningful progress. She also stated that the IEP can be written the same way in a life skills class, so it’s not a change of placement but instead a change of location. “Placement and location are separate arguments,” the district’s lawyer argued.

So the question remains: Is removing a student from his neighborhood school considered a change of placement? Does the child have a right to receive the additional 20 minutes of SDI in his neighborhood school? Or does the district have the right to move him to a school that provides a life skills class to ensure he makes more “meaningful” benefit? No decision in the case was made today. I will report back as soon as a decision is made.

Federal Appeals Court to Decide if Student with Down Syndrome Can Stay in General Education Classroom

If you are a parent or teacher of a child with Down syndrome, you’ll want to follow the proceedings of a Ninth Circuit case that may change how and where school districts place students with intellectual disabilities. You can watch the proceedings LIVE, Thursday April 11th here.

The case revolves around a 2nd grade Arizona boy with Down syndrome whose parents refused to send him to a self-contained classroom at a different school, because they argue he was making progress at his homeschool in general education. Starting in kindergarten, the student attended his neighborhood school in a regular classroom with a paraprofessional, and was pulled out 110 minutes for “intensive instruction” in reading, math and writing.

Related: 5 Tips for Including Students with Down Syndrome in the General Education Classroom

“Student was demonstrating progress on his IEP goals, including the majority of the goals that were implemented by the resource teacher (academic/social- behavior goals). Additionally, the student’s resource teacher admitted that his communication skills greatly improved from two-word phrases, which were limited to things he knew about, such as about his mom, dad, or sister, or naming things that he knew, to three to four-word phrases. The impact on his typical peers and teachers was described by his kindergarten teacher as ‘amazing’,” according to the plaintiff’s open brief (parent’s attorney filed).

The Gilbert Unified School District has 30 days after the plaintiff’s brief to file their own, but the following link gives you a more detail description of the district’s possible argument. Click here.

Ninth Circuit Court of Appeals

Despite his progress, the Gilbert Unified School District in Arizona decided just a few months into his kindergarten year that the boy should have 20 more minutes of “intensive instruction.” This time in a self-contained classroom at another school. The school district said the new school would be better for the student, and provide him with “more services at his level with peers in a small environment that could have been better for him.” This subjective opinion was the only evidence they used to propose a change in the boy’s IEP.

The parents argued that it amounted to a change of placement without the proper evaluation of his progress under his current IEP, but the district argued it was just a change in location. Although the Special Education Director testified the model of teaching was different at the new school, where the students would be in a self-contained class 100% of the day using a replacement curriculum.

Sound familiar? It’s likely, if you have a school-aged child with Down syndrome, your child or someone you know has fought a similar battle. After 30 years of research and federal law to back up inclusion with proper supports, parents are still fighting for their child to be included in kindergarten of all places. And the battle often gets more difficult as students progress through school.

But Endrew vs. Douglas County has give parents an opportunity to demand more for our children. The U.S. Supreme Court ruled that schools must provide special education that enable students with even the most significant cognitive disabilities to meet “challenging” and “appropriately ambitious” goals. For these students, progress may be measured against “alternate academic achievement standards” designed to promote further education, work, and independence.

Related: Realizing the Promise of the Endrew Supreme Court Case

The Ninth Circuit Court of Appeals must now decide if the school district made a change in placement and threatened the student’s access to a Free and Appropriate Education in the Least Restrictive Environment as the parents argue, or if it was simply a change in location as the school district contends.

The National Down Syndrome Congress and National Down Syndrome Society have written amicus briefs in support of the Arizona boy, stating the Supreme Court’s Decision in Endrew announced a “Markedly More Demanding” standard for educating students with disabilities, reflecting the IDEA’s high expectation for students. The organizations’ amicus brief also describes the research that proves “students with disabilities benefit from being included in regular classrooms with non-disabled peers.” You can read both briefs here and here.

Fortunately, the Individuals with Disabilities Education Act (IDEA) allows the Arizona boy to stay in his current placement while the court proceedings continue. He’s now in a regular 2nd grade classroom at his homeschool, and his parents say he continues to make progress.

The map below shows the states that will be impacted by the Ninth Circuit of Appeals decision. If you live in a different district the court decision doesn’t have to be followed, but could be used as a possible argument by parents or a school district in similar due process hearings.

The parents and school district can still appeal to the U.S. Supreme Court if they are unhappy with the Ninth Circuit’s decision. I’ll keep you posted on the court case as it unfolds.

You can read about the family in a local Gilbert, Arizona news story here.
You can also read a more recent blog post about the Arizona boy’s mom who has fought for the last 2-years to ensure he remains at his neighborhood school. Click here.

Have you or someone you know had to fight a similar battle for inclusion? Are you frustrated that we’re still fighting this fight more than 30 years after the Individuals with Disabilities Education Act (IDEA) was passed? Tell me about it below.

What to do when a school district doesn’t understand or believe in the Least Restrictive Environment

The 6th Circuit Court of Appeals recently called a school district’s arguments in favor of segregating a student with Down syndrome “a bit bizarre.” I’ve written about the case of 15-year-old Luka who wanted to continue to be included with his typical peers here. The school district’s arguments to send him to a separate school, in a self-contained class for students with more significant disabilities won’t surprise most of my readers though. Many of us have heard the same argument.

In the case, officially named L.H. v. Hamilton County Department of Education, The district referenced a video of Luka in a general education class at the public school stating, “‘L.H. was functionally isolated from typically developing peers despite sitting in their midst.’ The district contended that this is common because ‘the academic gap between students with disabilities and typical peers can be so extreme that it is isolating and stigmatizing.’”

The U.S. District Court’s response is one that you’ll want to keep in your IEP meeting playbook:

“This is really an argument against ‘mainstreaming’ as a concept, because the district believes it is impossible, impracticable, or counterproductive . If this is truly the district’s view, then it is worrisome and inadvertently supports the parents’ experts opinions that the teachers and staff reject mainstreaming because they do not understand it, do not believe in it, and need extensive training on why it is valuable and how to do it .”

Read Related Post: Using Luka’s Case at Your Child’s Next IEP Meeting

The U.S. District Court went on to say the “premise is that L.H. should not be mainstreamed because the teachers and staff were unwilling or unable to properly engage in the process of mainstreaming L.H., as they deemed it futile or useless in light of his disability.”

“These actions do not demonstrate a failure of mainstreaming as a concept, but a failure of L.H.’s teachers and the other staff to properly engage in the process of mainstreaming L.H. rather than isolating and removing him when the situation became challenging.”

Wow! This is what advocates of inclusion have been arguing for FOREVER! But finally a U.S. District Court of Appeals confirms this legal precedent, and you can use it to fight for a general education placement with supports FIRST. Luka’s lawyer, Justin Gilbert, is using the ruling in cases in Tennessee, Michigan, North Carolina, and even California to shift LRE back to general education first.

Read Related Post: Ninth Circuit Appeals Court to Decide if a Student with Down Syndrome Can Stay in General Education Classroom

Remember, IDEA defines LRE as follows: “To the maximum extent appropriate, children with disabilities, including children in public or private institutions or other care facilities, are educated with children who are nondisabled; and Special classes, separate schooling, or other removal of children with disabilities from the regular educational environment occurs only if the nature or severity of the disability is such that education in regular classes with the use of supplementary aids and services cannot be achieved satisfactorily.”

Remember these important points when fighting for LRE in general education with appropriate supports:

  1. Your child does NOT have to keep up with their typical peers or the grade level curriculum to be included meaningfully in general education. The 6th Circuit Court of Appeals confirmed this in Luka’s case. You can make the argument that the LRE is always general education with supports, as long as your child is making meaningful progress on IEP goals in light of their disability.
  2. IDEA and state laws outline a continuum of placement that always starts in general education with appropriate supports and moves to more restrictive environments only after all supports have been exhausted. How do you know when they’ve been exhausted? When you’ve tried everything (1:1 aide, modified curriculum, behavioral plans, etc) and your child has made no progress individual progress.
  3. The placement decision happens annually. Even if your child is in a more restrictive environment now, you can make the argument that LRE needs to be discussed and re-evaluated every year.
  4. Be careful how your child’s IEP goals are written. Those goals drive placement. So if you’re child’s goals are life skills based, like counting coins or tying their shoe, you may be writing your child right into a more restrictive placement. Always tie your child’s IEP goals to the grade level curriculum at their level.
  5. There’s no legal statute that defines “inclusion.” LRE is as close as you get to the idea of inclusion. Use the language in IDEA defined above, as well as this case to make your case for general education with supports FIRST.

Luka’s mother, Deborah Rausch, says “all those sleepless nights were worth it!” She has one message for parents: “Do not accept a segregated placement. It is not appropriate for most any child. Insist on inclusion, and use a great advocate to negotiate with the school until you get it.”

Luka has made meaningful progress in a general education setting at a private Montessori school since his case went to due process in his 3rd grade year. He was recently accepted into a private high school. Read more about his case here.

Luka with his mom, Deborah

Does your school district understand and believe in LRE? Tell me about your triumphs and tribulations surrounding LRE in the comments section.

From Awareness to Acceptance this #WDSD

March is Developmental Disabilities Awareness Month, and March 21st is World Down Syndrome Day. As my journey with my own son with Down syndrome has evolved I realize that I want more than awareness. I’d love for our society to move from awareness to acceptance, recheck our ableist tendencies, and provide a more equitable world for our loved ones with disabilities.

I admit I once wore those “crazy socks” for World Down Syndrome Day, but now realize the campaign does little to persuade people to actually accept my son. The organizers of his trend even changed the name to “wacky socks,” because of the inherent ableism in it’s name: “crazy” socks. I think it’s important that we move past these awareness campaigns to something that persuades actual action. But how? How do we raise awareness and persuade people to truly accept people with disabilities for who they are?

Outside of the classroom, there’s many small, yet powerful actions you can take. Advocating for laws that end sub minimum wages, and promote community inclusion can be as easy as sending a letter to your representative or showing up to a rally. Another powerful step towards equity is working with people with disabilities to understand how they want to be respected and supported. Always question yourself and others. Do you or people around you still harbor ableist feeling like pity or inferiority of people with disabilities? Learning from these moments and moving forward is an important first step towards acceptance, and something I still practice and struggle with sometimes.

When and how should parents formally introduce their child in a classroom setting, and promote disability acceptance? 

First, let’s talk about what NOT to do. You might have come across the use of disability simulations: marshmallows in the mouth to simulate low tone and lack of intelligibility, hands in mittens to simulate poor fine motor skills, blindfolds to simulate–well, being blind. Do you notice what all these simulations highlight?

What a person can’t do, rather than how individuals with disabilities successfully adapt to their environment with the right modifications and supports.

Instead of promoting empathy and awareness, research studies show disability simulations actually promote fear, apprehension, and pity towards their classmate with a disability. Also, because the simulation is only for a short time, it’s hard for typical students to truly experience the classmate’s limitations in a meaningful way.

Awareness Activities in Grade School

Trying to promote acceptance will take more time and thought than awareness campaigns but they’re worth it. I invited a local self-advocate with a disability to come talk to our entire school body about acceptance. I hope that this will make a lasting impact.

Many teachers and parents like to take a more broad approach to awareness of differences in lower grades. For instance, in kindergarten through 2nd grade you may not even mention the term “Down syndrome” or “Autism.” Many parents decide the discussion shouldn’t single their child out, but foster acceptance of all students. Children’s books are a great way to foster acceptance of people for who they are. Here’s some examples:

“My Friend Isabelle” by Eliza Wilson: I love this book, because it starts with two friends that have so much in common, but also talks about differences. The reader only finds out that one character has Down syndrome by reading the jacket note at the end of the book. It also has a guide to help teachers and parents incorporate the book into a classroom lesson. Watch the YouTube click below for a video version of the book.

“The Day the Sheep Showed Up” by David McPhail: About farm animals who had never met a sheep before. The sheep teaches them that they are more alike than different. Great metaphor for accepting those that are different, and fabulous for new readers.

“King Louie and His Marshmallow Kingdom” by Louis Rotella: About a little king who rules over a kingdom where the sun always shines and every meal is a picnic. Louie explains to his friends that he loves to do kid-things, even though he’s different. This is one of my all-time favorites!

Awareness Activities with Older Students

Books can also be used with older students, and some may actually define a disability. But more hands-on or project-based activities are also fun at this age. Open discussions about what students already know about disabilities (or think they know) is imperative. Prior knowledge allows teachers and parents to assess where to start, as well as any preconceived notions students may have. Discussing inclusion is also important at this age. All kids want to be included.

The Governor’s Council for People with Disabilities did a fabulous disability awareness campaign in Indiana and posted all of their lessons here. Some of their ideas include:

  • Students create a class motto for inclusion
  • Anonymously write questions students have about disability and difference, and have those questions read and answered as a class (or in private)
  • Create a classroom mural that depicts what an inclusive class, school, and community looks like
  • Perform a simple skit showing appropriate and inappropriate ways to interact with classmates with disabilities: people’s first language, asking before you help someone, inviting classmates to special occasions, treat your classmate the way you want to be treated
  • Show a movie or show that depicts someone with a disability as the main character
  • Evaluate their school or local business to see if they accessible for people with disabilities. If they’re not, come up with a plan to change that.
  • Invite a sign language interpreter to teach students some simple signs.

What are you planning to foster acceptance in your child’s classroom? Add some ideas in the comments sections.

The following are some other books that may help you foster acceptance in the classroom: